Well last week was a trying week with Jordy, he was running high fevers and having small seizures as well as refusing fluids. We plugged through and he is in great spirits this week. Full of smiles and really looking forward to summer. I am going to try and attempt to take him to another baseball game either this week or next. I miss how much he used to love being social and going to ball games but still hopeful if we do it little by little maybe we can get that spark back in him. After all we are a baseball family.
I wanted to take this opportunity to thank everyone for their support sunday at the charity concert. Hurtin Merv, Shelly Rastin Band and Bender, you are all class acts and you provided entertainment like no other. Dave Cobain for your tenacity and ability to run with this idea and make it a reality. EastSide Bar and Grill for hosting the amazing event and all of the volunteers, Ami Reed for putting the bug in Dave's ear and helping him run with the ideas, Tracy Wilson-Peakman, Pat Crawford, Lisa Dobbie, Alicia Grant and many others that I am still learning their names.....thank you from the bottom of our hearts. Your time, talents and support means the world to us all. To all the family, friends and friends and family we never knew we had....THANK YOU Your support means more than words can express. I will be posting videos and pics of the spaghetti dinner and the benefit concert soon...I promise!!
To my parents, my husband and our amazing children, thank you for always being there for me, thank you for never asking why I need help or questioning you when I call in the middle of the night. Thank you to our friends that bring me food and coffee when I sit in the hospital for hours or have pulled all nighters with Jordan. I know I have said it before but really I would not be half the woman I am today without you all.
On one last note, I have been approached by 3 separate people in the last few days about doing more fundraising for Jordan and I am going to say thank you sincerely for thinking of us but no thank you. I want everyone to focus on other families that need help, there are over 320 special needs families in the London Area and over half are without any gov't assistance or funding. We will likely always need help with providing equipment for Jordan however we have made it this far I am sure with the generous donations we have received we will make it even further. Our family is still collecting poptabs and we are well on our way to being able to provide another wheelchair to a special needs child that desperately needs one (even more so than Jordan). Keep your eyes peeled for a poptab update in the next 2 weeks....I am very excited to share this with you all. If anyone wants to donate to help special needs children in the London Area I encourage you to donate to Easter Seals, CPRI or Thames Valley Children's Centre. Please don't take this the wrong way because we appreciate every cent donated to help support Jordan and every minute people have given us of their time but we would like to pay it forward and be able to help others as well. Jordan's Journey might be working on another benefit at sometime in the future but for now we are going to relax, enjoy our summer and smile knowing how many people in our community have touched our lives.
I have attached a video link that is for all of you, even though it is a love song it really speaks volumes for how I feel about each and every friend we have, because I couldn't breathe without you all. http://www.youtube.com/watch?v=_9wKi1keg8g