Well we have had a busy summer. Some great some not so great.

Jordan has been in the hospital for more prolonged seizures and refusing food and fluids this summer, he has started some new seizure meds and he keeps fighting and we keep trying. Some days are better than others and we know it is just another hurdle. We have postponed surgery for a feeding tube until we can figure out when Travis' heart surgery is going to be. Hopefully we will know within the next few weeks. I don't want to schedule one surgery and then find out we have 1 child in the hospital in London and 1 child in the hospital in Toronto. 

With the new meds Jordan has started eating and drinking again, his hair is growing back slowly and very light. He isn't drinking much but it is enough to keep him hydrated and some days he drinks as if he is famished. Loading him with carbs has done wonders because it keeps a little bit of weight on him so he doesn't lose everything when he is sick for a week or 2 and hey lets face it....taters and pasta are Jordan's favorite LOL

Jordan has had a quiet summer but it has been filled with smiles and laughter. He has started to tolerate social occasions a little better and can actually visit with people for 20-30 minutes before he screams for us to get him out of the situation. We are hopefully taking him swimming this weekend as he loves the water and maybe even a splash pad as well. Samantha was home for a few weeks to visit and I think Jordan missed her as much as I did.

Jordan starts grade 8 in 2 weeks and as I am excited for him I am also scared as can be, Grade 8 means a huge milestone that we never thought was possible for Jordan. It means graduating with friends that truly care for him  but it also means a new school next year, new EA's and a new environment and we all know how much Jordan doesn't like anything new. Lets not think that far ahead yet :)

We will hopefully have all of the bathroom renos done in October and Jordan will be able to have a full bath in a tub full of water. This wouldn't have been possible without all of the help from our community, friends and family with both benefits that were held for Jordan. I can never stop thanking you all enough. I have been racking my brain on how I can repay our community and I have several ideas but still thinking. 

I am happy to say once school is back in, in 2 weeks I hope to have a few weeks to think and gather my thoughts and tie up lose ends before chaos of surgery ensues. 

Thank you to everyone that reads this blog, to everyone that passes this blog along to someone it may help and to Jordan for being so special that I want to share him with the world. 

PS we have had a few great storms this summer and I have danced in the rain!!