The end of Feb 2012

The same night I finished updating Jordan’s blog we had another episode. A seizure that lasted an hour and 20 minutes.  8pm and as I was undressing Jordan to get him ready for bed he started to seize. We gave the rescue meds and they didn’t help at all so we called an ambulance. The ambulance was here in a hurry and off to the hospital. I had just said goodbye to a house full of guests as we were having our annual Daytona 500 party and the race was cancelled due to rain. To spend a day full of cooking and entertaining to now a night in emerg.

We got to the hospital and they gave another 4mg of lorazepam and the seizure didn’t stop so they started the IV dilantin. After an hour and 20 minutes it finally stopped.  They decided to send him to the PCCU (pediatric critical care unit) to be observed for the night since his heart rate had increased so much and his respirations were very low they were worried about a stroke or him not getting enough oxygen since he was highly medicated. At 4am the nurse told me to go sleep in the quiet room where the doctors or parents can grab a few hours rest. It is a small private room attached to the PCCU. It has 2 beds that are basically a wooden box with a 3” piece of foam on them. I went in to lay down and found a plastic pillow and a sheet....needless to say it was likely the best sleep I was going to get either way.  I woke up at 7am and was worried so I went back into Jordan’s bed at the PCCU and he wasn’t there. They told me they had put in a NG tube to give him some nutrition while he was sleeping since he sleeps for days and he woke up and was happy and breathing well so they sent him up to a room.  I went up to the 6^th floor of the hospital and as soon as I got off the elevator I could hear Jordan and he was not happy. He was very grumpy and screaming.  I went into him room and they had him in a crib. Could be why he was screaming but could of been that he was feeling crappy. I talked to the nurse and got him some food and turned on cartoons for him. When the doctor came in to see him they were shocked he was so wide awake and eating. He never bounces back that fast. They said as long as we felt comfortable enough with how he was doing we could go home as they couldn’t do much more for him. His seizure meds were increased again and we were given another prescription for rescue meds and home we went. Within 3 days Jordan was eating full meals, sleeping great and back in school.