A Tribute to the most wonderful man I know!!

The most wonderful man I know is Jay. He cares for us all and works so hard to provide for our family. Jordan's eyes light up so much when he sees his Daddy walk into a room. Jay's job is to bath Jordan and lift him whenever possible trying to save strain on Mom. This is a man that walked into this child's life knowing the obstacles that lay ahead and embraced him with open arms. 

He is the man that lays on the floor beside Jordan and talks and whispers in his ear. He is the man that cries when Jordan is sick but is strong as a rock when crisis happens. He is a quiet personal man but will pour his heart out if asked about his children. Jay is an inspiration, a breath of fresh air and even though he might not always be politically correct he wears his heart on his sleeve. I understand why Jay is such a good father and it is because he had an amazing man to look up to and learn from. Jay is a carbon copy of his dad and I am sure his dad is very proud and watches over us every day. 

 I love you babe and I couldn't do any of this without you.

Spaghetti Dinner and Silent Auction

Slo-pitch City in Dorchester, Ontario is hosting a spaghetti dinner and silent auction for Jordan April 6, 2013


He turned 13 yrs old on January 19 and is growing very quickly; he is in desperate need of new equipment such as a wheelchair, bathseat and lift, stairglide etc. This is next to impossible to a fford over $20,000 in equipment in the next year alone or so and as he continues to grow equipment will need to be replaced or altered. His father works tirelessly 6 days a week to provide for the family and we have never asked for help before from any private or public funding such as organizations, government funding etc. Now is the time to do some fundraising to help Jordan's Family.
Daily tasks are getting more complicated like bathing, dressing, feeding and day to day care. As Jordan grows it makes it challenging for the family to continue without necessary renovations to our home.
In total for renovation costs and equipment costs we are looking upwards of $40,000. We are taken back by this number knowing it is going to grow as he gets older and bigger. I hope all of our friends and family can attend this event. We have an awesome DJ and MC for the night. Some great donations are coming in for the silent auction but more are still needed. Jordan's mom will be catering the spaghetti dinner along with help from friends and family. 

Jordan's Voice- Through a Mother's eyes: Jordan's Message - Love This had to repost!!

Jordan's Voice- Through a Mother's eyes: Jordan's Message - Love This had to repost!!

January 2013

HAPPY NEW YEAR

Jordan will be a teenager on Jan 19, 2013

13 years old....I can't believe it has been 13 years!!!

The ups the downs, the good times, the hard times and the impossible times. I would not change it for anything in this world. He is my angel and my boy forever. So many people tell us they have no idea how we manage every day, doing the day to day tasks for a child that needs care 24/7 and some days when we ourselves have had little to no sleep. I have been called a supermom, wonder woman and all that jazz........to you people I say:

I have an easy job, I have the best teenager possible, he won't be sexually active, he won't talk back or be mouthy, he won't make my house messy or have wild parties while I am away, the only drugs he will ever do are prescribed ones that I give him and we will never have to pick him up from a dance, party or other at 3am.........so now I say doesn't that make my life seem a whole lot better??? HAHAHA I promised you all a good news update and something to make you smile and be happy about....hope this gave you all a smile for the day!!

Hoping to finally post some more pics this month as I finally have my laptop fixed as well!! <3

June 2012- December 2012

Jordan had a pretty quiet summer, several small seizures but nothing that put us back into the hospital thank goodness. Lots of baseball games and spending time with family.

Samantha started University at Lakehead University in Thunder Bay which is 18 hours North from where we live. Travis started his first year of high school, Jordan is in grade 7 and Zander will be starting school in a year. An eventful but good fall. Thanksgiving was fun and so was Halloween although it was freezing cold and Jordan did not want to take part in dressing up. He stayed home and helped me hand out candy. 

Travis had some medical issues with his heart condition in November and we are having to watch him closely with sodium intake and activity level ect. 

December Jordan had a lengthy seizure at school and ended up in emerg again his new emergency meds midazolem seem to help quite a bit in shortening the seizures. This one only lasted 25-30 minutes still long but not nearly as long as previous ones. 

We purchased Jordan a hi-tech video monitor that records him while he sleeps and has night vision. We are certain that Jordan has small night seizures but even checking on him every hour through the night I can't seem to catch them happening. We hope this will help to catch the seizures, figure out how long they last and help me to sleep a little.Jordan has an upcoming Neurological appt Jan 7th so that will be a fun day at the hospital. Jordan's birthday is coming up soon and I have no idea what to get him.....lets hope he doesn't ask for another ambulance ride this year :(