Jordan had a pretty quiet summer, several small seizures but nothing that put us back into the hospital thank goodness. Lots of baseball games and spending time with family.
Samantha started University at Lakehead University in Thunder Bay which is 18 hours North from where we live. Travis started his first year of high school, Jordan is in grade 7 and Zander will be starting school in a year. An eventful but good fall. Thanksgiving was fun and so was Halloween although it was freezing cold and Jordan did not want to take part in dressing up. He stayed home and helped me hand out candy.
Travis had some medical issues with his heart condition in November and we are having to watch him closely with sodium intake and activity level ect.
December Jordan had a lengthy seizure at school and ended up in emerg again his new emergency meds midazolem seem to help quite a bit in shortening the seizures. This one only lasted 25-30 minutes still long but not nearly as long as previous ones.
We purchased Jordan a hi-tech video monitor that records him while he sleeps and has night vision. We are certain that Jordan has small night seizures but even checking on him every hour through the night I can't seem to catch them happening. We hope this will help to catch the seizures, figure out how long they last and help me to sleep a little.Jordan has an upcoming Neurological appt Jan 7th so that will be a fun day at the hospital. Jordan's birthday is coming up soon and I have no idea what to get him.....lets hope he doesn't ask for another ambulance ride this year :(
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