Well Jordan has been relatively good the last few weeks. He
has not been eating or drinking very well but he has been very happy and full
of smiles. We had a rough few days with some small seizures at home but all in
all nothing that warranted a hospital visit. Been an interesting few weeks with
all of the kids. Jordan goes in for some
more blood work to check his liver as always we have to keep a close eye on it
with the high doses of Valproic Acid he is on (750mg twice per day and remember
he is only 45lbs). I have a sneaky suspicion something is going on that is
stopping from him eating and drinking as well as he usually does. Fingers
crossed there is nothing going on. We really don’t want to tackle liver failure
or failure to eat and drink on top of everything else he has going on right
now.
We are now 7 weeks away from the spaghetti dinner and silent
auction. I am so honored and humbled by all of the generosity of our friends,
family and community. There has been a trust account set up for Jordan to help
with any future equipment needs, renovations to the home, nursing care, van
conversion etc. Thank you so much to TD Canada Trust for all their help setting
this up. I don’t even want to fathom those expenses at this time as we have
enough on our plates with the current immediate needs. I was informed this
weekend that another event has been planned on behalf of Jordan and it is a
concert event on June 9th here in London. I am not planning this
event it is being planned for us but I have been told details will follow and
there is 3 local amazing bands that have signed on to do this benefit concert.
I am excited!! As always our hearts are warmed by the generosity of others in
our time of need and it really makes us speechless. 1000 Thanks go out to
everyone involved.
Jordan’s blog is over 1600 views from 14 different Countries…let’s
see if we can get over 2000 views before March 1st J
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