I don't even know where to begin this summer but it definitely was the best summer Jordan has had in years if not ever. NO major seizures and he was so happy and social. We were able to do things as a family and not worry about his mood or his illness. He went to many baseball games and truly enjoyed them again.
I could stay with him at a baseball tournament for the whole day and he would smile, laugh and clap the entire time. It sure is nice to spend these days with Jordy. It has been so long that we could spend a whole day or even a whole weekend out with Jordan being active that I forgot what it felt like. He is amazing and he makes me smile every day.
I think Zander really noticed a change in his brother this summer as well. They bonded and became close. Zander loves helping with Jordan in any way he can.
The summer that started off so rough made us into a family again. I am excited to see what the next few months bring. Jordan has been doing very well with the new meds, his blood levels have started to come back to normal and other than the first week of school no big seizures.
The first week of high school was a little rough but Jordan always hates change. He had several large seizures and his shunt was malfunctioning but we got it worked out and he was good as new again. He seems to enjoy his new EA's and his new school and is becoming well adjusted to the changes.
Sam is still home with us and doing a bit better each day. I think she likes seeing her brothers often even if she wishes she was on her own again. All in time.
Our friends and our family have given us strength through some of the roughest moments any family would have to deal with and now it is our time to show them the strength did not get wasted.
Through our battles we have become the family we are today. Some days a bit frazzled, many days a whole bunch of crazy but most of all more love than words could ever explain.
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