Well a pretty uneventful winter and spring. Jordan had a mild cold and stomach flu during the winter months and he lost several pounds when sick. He has gained it back now. Jordan’s 11th Birthday was on January 19th, he of course was spoiled and had loads of fun. Jordan loves eating cake with his hands. The rest of the winter and spring was pretty calm for Jordan anyway.
Jordan started seeing a new paediatrician this year. So far so good...he is very nice and thorough. He believes Jordan may have Cerebral Palsy as well as all of his other neurological and health issues. I wonder how something like CP can go undiagnosed in a child that has seen as many doctors and specialists as Jordan has in his lifetime. This new paediatrician has set up the appts and paperwork for Jordan to finally be seen by genetics. We have asked and asked for Jordan to have genetic testing done so we know everything we are dealing with and we could possibly have some answers but, it never happened. There were always more pressing matters to deal with when it came to Jordan.
Today is June 26, 2011 and we have a very special appt tomorrow. We have Jordan’s genetics appt. We have waited 11 years for this appt and I am a little nervous, anxious and excited. I hope to get some answers tomorrow or in the near future anyway. I have said for 11yrs I can deal with anything as long as I can be prepared and research information. Living with a child every day not knowing what tomorrow will bring, not knowing when he could take a turn for the worse, not knowing his full medical diagnosis and not knowing when we may have to say goodbye to our son is so difficult. I don’t think anyone really understands. Even broad general answers will be better than what we have right now. I can not wait for tomorrow to be here and for whatever kind of answers they can give us. I am not holding my breath but I am sure not going to sleep tonight either.
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